We go to a very special place each September where we hold our annual Fabry Family Education Conference followed by our annual Charles Kleinschmidt Fabry Family Camp. We bring everyone to Greensboro, NC as early as we can on Thursday for more informal conference activities, then a full day of educational presentations on Friday. At about 5:00 pm on Friday, we transport everyone to nearby Victory Junction for the weekend camp. It's awesome!
See more details about these events and to obtain the camp forms you need on our website in the "Upcoming Events Section". Look at the July 1 calendar item and the Conference and Camp calendar items. They will prepare you for submitting applications.
Criteria to attend: If you have at least one child with Fabry disease that is 6 to 16 years old, you are eligible to bring your entire immediate family to our expense-free family conference (Thursday and Friday day-time) and annual Charles Kleinschmidt Fabry Family Weekend Camp (Friday late afternoon to noon Sunday).
We provide transportation from around the country to the conference and camp as well as conference hotel lodging and meals. We provide transportation from the conference to Victory Junction and back to the airport on Sunday. We contract with Victory Junction to provide lodging, meals, snacks, and loads of fun at camp. Travel to North Carolina is on Thursday for most participants.
We also need volunteers to support our camp. Family and friends, clinic staff and industry staff are welcome and encouraged to apply. It is a great experience! Please submit volunteer applications as soon as possible beginning July 1. Volunteers can also find more details at the July 1 calendar entry in the Upcoming Events section of the website.
Please share this information with your friends and family!