The NFDF maintains several social media sites.

We like to provide you with information where you like to get it. We have a face book page, a twitter account, a Linked-In account and an Inspire discussion page. 

Our social media program links are located in the Connect With Us section in the upper right area of the home page and at the bottom of the home page.

In our handout entitled The Fabry Community Landscape located in the Featured Resources section of the home page, we tell you about other Fabry community social networking sites as well. 

To show your support and to stay in touch, please "Like" our face book page and follow us on face book and twitter. We usually post information on face book before our website or newsletter. 

The other type of social networking we do is the awesome face-to-face kind. Through regional meetings, our annual Fabry family conference and the annual Charles Kleinschmidt Fabry Family Camp we bring families together to get to know each other and to learn from each other. Many families who have participated in our camp leave camp with the beginnings of long-term freindships and mutual support relationships. It is community building at its best.

Thank you for your participation and support!

We Need Your Help

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  


Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

Connect With Us