Keeping the Fabry community informed
Jerry's Fabry Disease Blog was created to spread awareness about Fabry disease, a rare genetic disorder, and to share news and information about what is happening in the Fabry community. The blog is one component of the National Fabry Disease Foundation's social networking program.
Fabry Disease Awareness Month in April seems like a great time to restart my blog. I have not been able to find the time to blog in a very long time but I am going to make it a priority. Also, I am going to make my blog more personal to be different than other Fabry disease or National Fabry Disease Foundation information we provide. I hope writing about my experiences may help others. I turned 60 years old in November, 2014. It seems like a monumental occasion to celebrate. After all, I am a 60 year old male with classic Fabry disease. I never believed I would live this long.