Fabry disease is a rare genetic disorder.  The most common U.S. statistics referenced in published literature indicates that Fabry disease is present in 1 in 40,000 to 1 in 50,000 males.  Due to the greater complexity of determining the occurrence in females and because we are not aware of any published studies, the occurrence in females is not specifically stated.  However, the population of known affected females is rapidly increasing over original expectations due to better understanding of the random nature of disease manifestations in females.

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As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  


Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

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