In addition to the National Fabry Disease Foundation (NFDF), there are many organizations in the U.S. and around the world supporting the Fabry community. Their respective focus areas range from supporting Fabry disease only (NFDF, FSIG and FIN) to including Fabry disease among other Lysosomal Storage Disorders (Lysosomal Disease Network/LDN World Symposium), and other national broad-focus genetic and rare organizations like NORD, Genetic Alliance, the EveryLife Foundation).

Please see the NFDF's "The Fabry Community Landscape" handout located in the Featured Resources section of the website homepage. One page of the handout is devoted to a few of these other organizations. 

We Need Your Help

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  


Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

Connect With Us