Our official awareness color & ribbon have been a long time coming!
Over several years various small groups of the Fabry community had many discussions about an official color and an awareness ribbon, mostly on face book. Each time, we had good discusions and community input but we never brought the discussions to a decision. This was not because it was contentious. Is was just because we needed a conversation among the North American Fabry support organizations with input from our community to find a color and ribbon that would work for everyone.
Well, we finally did it. Hooray! Our official color is a dark blue in the spirit of a denim blue color, the color used by some other organization for rare diseases. On the PMS color chart it is PMS 541.
The New Fabry Disease Ribbon
The font and colors in the helix may vary somewhat among different organizations or individual uses but it should maintain its basic identity. For instance, the Canadian Fabry Association (CFA) said they will probably change the helix colors to their organization's color themes.
We would especially like to thank the following individuals for their roles in making this happen:
Mercedes Schrank for her MOTIVATION. She nudged us to get the ribbon done for an upcoming April Fabry Awareness Walk.
Florenda Baldwin for her INSPIRATION. She worked with the Fabry community to design a ribbon with a helix that many people really liked in a face book poll.
Kellie Johnson for her DEDICATION (hard work and perseverance) for her efforts to make a ribbon design with the words Fabry disease and the helix and for providing the final art that anyone can use.
Linda Keyes for her CONSULTATION. Linda kept us straight on the helix image.
Jack Johnson (FSIG) and Gina Bucci-Costantino (CFA) for CONSULTATION and COOPERATION. Our three support organizations worked together.
Jerry Walter (NFDF) for his COORDINATION in helping to bring all the moving parts together.
Thank you to many of our international Fabry community members for their input and PARTCIPATION.
The art vector files used to make the ribbons and other products with the ribbon design are available to anyone through one of the organizations FSIG, CFA, NFDF, and others.
By Jerry Walter, NFDF Founder and President
For information about awareness materials, please see the Fabry Disease Awareness Materials tab in the drop down menu under the homepage's top menu bar titled Programs and Projects.
What can you do to help increase awareness? It takes a village!