Jerry Walter

Founder and President

Jerry Walter retired as a Colonel in the U.S. Army where his last assignment was managing a multi-million dollar nationwide environmental management program. Since 2005 he first worked part-time for the NFDF while he was still in the military and now works full-time since his retirement from the Army in 2011. He has over 32 years of management experience with 27 years of active duty military service. His management experience is supported by a strong background in financial management and strategic planning. One of Jerry's many assignments was as a strategic planner in the Pentagon during the tragic events of 9/11. Jerry has a Bachelor's degree in Environmental and Natural Resource Policy from Michigan State University, a Master's degree in Administration from Central Michigan University, and a certificate from Duke University in non-profit management. He is one of several family members with Fabry disease. Jerry has two sons and nine grandchildren. He currently lives in Chapel Hill, North Carolina with his wife Angela and two girls, Molly a mini-beagle and Annah a Golden retriever.


Susan Spinks

Administrative Assistant

Susan Spinks has lived in Chapel Hill North Carolina for the last 25+ years and is proud to call it home. During her time in NC she has had a variety of different positions, mostly involving Admin for different entities. She says she is very proud to now be working with Jerry Walter at NFDF. It is an amazing organization which is doing very important work for an underserved population. She actually met Jerry through his wife Angela and their dog Annah when their dogs were puppies and in a Puppy Class together. The dogs, Chloe and Annah, became fast friends and so did the parents! Susan is looking forward to seeing many of you again at the NFDF’s annual conferences in Greensboro NC.

Susan is responsible for maintaining our finances in QuickBooks, constituency management, My Health Handbook kit and awareness materials distribution, and an assortment of other duties. We are very happy to have Susan with us!

We Need Your Help

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  


Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

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